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Ehlers-Danlos Syndrome strikes again

I had an MRI recently on my hips. There was a choice of either the knees or the hips, as I’d complained about pain in both areas to my rheumatologist. I chose the hips, because they’d been painful for longer. Results showed that the cartilage in the hip sockets is ‘frayed’. This explains the agonising pain I’ve been experiencing for the past few months. It turns out that my hip joints go into the sockets at a different angle than other people. Why? Because of Ehlers-Danlos Syndrome, a genetic connective tissue disorder. My worst fear had been that the pain was due to rheumatoid disease/arthritis, so I should be relieved. The news came as a real surprise. It seems that erosive joint damage caused by RD only affects my hands and wrists at the moment, which is not what I’d expected at all. However, it does confirm that Ehlers-Danlos Syndrome is arguably just as serious for me as rheumatoid disease.

How can I prevent my hips deteriorating? Physiotherapy is the suggested way forward, as surgery is always the last resort where EDS is concerned. Poor healing skin and excessive bleeding are two reasons why I’m reluctant to choose surgery. Another reason is previous operations on my feet have not been entirely successful. Perhaps all the training I did for the fundraising ‘Superhero 5km walk’ several months ago contributed to this problem. On the other hand, it could have happened anyway. At least I know what it is and what to do about it which is all that matters.

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