Good and bad news

Today my rheumatologist did an ultrasound scan on my hands to assess the level of inflammation. I haven’t been on any medication since January (for reasons described in other posts on this blog). The good news was that I seemed to have less inflammation in my hands than since the last scan months ago (I think it was October 2012). The bad news is I now have some erosions of the bone in both hands, which is scary. But as I don’t want to go on any new medication until my neurological symptoms improve, she has referred me to have hand therapy. This means I’ll be treated the old-fashioned way for arthritis (before medication) – using things like splints and doing hand exercises.

Although it’s depressing to learn about the erosions in my hands, I was over the moon to find out that my Vitamin D levels are now normal (62) – previously they were 38. I’m going to keep taking 1,000 international units a day as I have borderline osteoporosis in my hips and thighs, as recommended by an osteoporosis expert at the hospital.

Another option I didn’t know existed until recently is to ask for a referral to a rheumatologist who specialises in Homeopathy. I’m definitely going to do this as conventional drugs haven’t worked for me so far. I know they work for lots of people, which is great, but having had three allergic reactions to different drugs since last September, I’d like to try a new approach before I even consider going back to conventional medication.


2 thoughts on “Good and bad news

  1. How’s your hands? I had joint problems when I was 17. My hands, feet, hips, and knees were all swollen and the pain was on and off. My aunt was also suffering from tendonitis that time and was having a stem cell treatment with her ortho surgeon, Dr Purita. When she found out that my physical therapy wasn’t successful and that I stopped seeing my physical therapist, she told me and my mom to give stem cell a try too. I did. The treatment was good, thanks to my aunt Marie and Dr Purita, I was able to have a normal life again. It has been 4 years and my joints are still functioning well. I hope I was able to inspire you and other OA patients too. Wish you find the best treatment for you too. Stay safe! 🙂

    • Hi, thanks for your comment and good to hear that you’re feeling better. I have rheumatoid arthritis rather than OA though so I think the treatment will be different. This is quite a useful chart to see the differences between the two: My hands aren’t good at the moment but I’m not ready to go back on a drug that suppresses my immune system. Hopefully I’ll get some answers from the Neurologist soon so I can make an informed decision about next steps.

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